Registered Seat and Postal Address:
The European Genomic Medicine Consortium (EGMEDC)
Kalvebod Brygge 39, 5.
1560 Copenhagen V
Denmark
Represented by the Executive Board:
- Chair Jens-Ole Bock, Convener of EGMEDC, Founder (CMN)
- Co-Chair Cecilia Jimenez Mallebrera, Director Laboratory of Translational Research into Children's Neuromuscular Disorders (Hospital Sant Joan de Déu)
- Alessia Cavazza, Associate Professor in Gene Therapy (UNIMORE / UCL)
- Ellen Koekoeckx, Global Advisor for the Foundation for Angelman Syndrome Therapeutics (FAST)
- Özcan Met, Head of Cell Therapy Unit at National Center for Cancer Immune Therapy (CCIT-DK)
- Emmanuel Mussault, Patient Research Advocate, Founder of One-Health Innovation Observatory (OHIO)
Contact Information:
- Email: secretariat@egmedc.eu
- Website: www.egmedc.eu
Register Entry:
- Type of Organization: Non-Profit Voluntary Association (Forening)
- Register of Legal Entities: Central Business Register (CVR), administered by the Danish Business Authority (Erhvervsstyrelsen)
- Registration Number: CVR 46256026
- Date of Registration: 10 February 2026
Value Added Tax (VAT) Identification Number:
Not applicable
Liability Disclaimer and Intellectual Property
1. Content Responsibility
The contents of this website have been created with the utmost care. EGMEDC acts as a pan-European communication platform for stakeholders in genomic medicine — including patients, clinicians, researchers, industry, and policymakers. However, EGMEDC cannot guarantee the absolute accuracy, completeness, or topicality of all contents provided. As a service provider, we are responsible for our own content on these pages in accordance with general statutory laws.
2. External Links
Our website contains links to external third-party websites over whose content we have no control. Therefore, we cannot accept any liability for these external contents. The respective provider or operator of the linked pages is always responsible for their content.
3. Medical and Scientific Disclaimer
The content provided on the EGMEDC platform is strictly for informational, educational, and collaborative dialogue purposes. It does not constitute medical advice, clinical diagnosis, or treatment recommendations. Patients and the public must consult qualified healthcare professionals regarding genetic conditions and CRISPR-based or related genetic therapies.
4. Copyright
The contents and works created by EGMEDC on these pages are subject to European copyright law. Reproduction, editing, distribution, or any type of use outside the limits of copyright law require the prior written consent of EGMEDC. Downloads and copies of this site are permitted for private, non-commercial use only, provided proper attribution is maintained.
Version - 2026-08-20